November 3, 2009

Helping Asher and his mommy beat cancer!

This is something i never thought i would have to do, but unfortunately here it is:
Let me introduce you to my grandson. This is Asher:

Asher was 10 months old when this picture was taken in September 09. He seemed like a perfect bundle of health. Three weeks later he was fighting for his life. On October 5th, after a couple of weeks of doctor and ER visits, he was diagnosed with a brain tumor and immediately taken to PICU. They had to drill a hole in his skull to relieve the pressure that was building up because the tumor was blocking the spinal fluid to drain properly.
Here is Asher in PICU on Oct 9th:

On October 9th he underwent brainsurgery at the Children's hospital in Oklahoma City to remove the tumor, the surgeon was sure she had gotten all of it and we were thrilled to hear the news and then we were told that the tumor is malignant.
The name of the tumor is extraskeletal myxoid chondrosarcoma (EMC). Average age for humans that have this type of tumor is 40yrs and up and it is even more rare for it to be in the brain. The doctors explained to us that they were baffled because they have never treated of a case like this nor have their expert colleages around the USA who were consulted, one said that he has HEARD of one case. This type of tumor does not respond well to chemo so the doctors are looking at localized radiation. We will know for sure how long and how often he will go thru these treatments tomorrow when we go see his oncologist.
My daughter spent day and night with Asher while he was in the hospital till his release last friday.
Here is the reason for this post: my daughter has been unable to work because she needs to take care of him, she is on unpaid medical leave from work. Even though his medical cost is covered they are still facing basic expenses such as rent, food, utilities, gas to drive back and forth to hospital and doctor visits. Asher will most likely be in and out of the hospital for the next year. Her dad and I are planning to help out as much as we can but i decided to start up a fund for Asher to hopefully give my daughter some peace of mind so she can fully focus on getting Asher healthy without worrying about paying her bills. They can use all the help they can get and even more importantly they need all the prayers they can get also.
If you would like to contribute to Ashers fund you can do so by donating here:

or you can also send your donation via paypal to his account. The email address is

If you would like to read more about his journey you can visit his website here:

Thank you for reading my post and please keep him and his mommy in your prayers!
We saw the oncologist today. She suggested for Asher to go thru radiation for 6 weeks, 5 days a week. He will go to another facility to do this radiation because it is something called Proton Radiation Therapy. The difference between old style and Proton is that with the old style the radiation treatment damages anything in the way including healthy tissue. Proton is a new type of radation that minimizes damage and has a more powerful effect. The doctor is trying to get rid of any bad tissue that surrounded the tumor. Ashers pituitary gland will be damaged during this treatment and he'll require to take hormones for the rest of his life. The doctor said she thinks it's worth it, if this tumor returns it would mean another brain surgery and she said the chances of them being able to remove the whole tumor again are very slim. We are very greatful that OKC is offering this new type of treatment, i heard that it's 1 out of 6 machines in the whole USA. So keep praying for my little buddy Asher!
Ashers G'ma

1 comments on "Helping Asher and his mommy beat cancer!"

Shannon "Coupon Princess" on November 10, 2009 at 9:11 PM said...

Wow.. Oklahoma is amazing. I can't believe we have one of the 6 machines for treatment. God is good.

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